I’m starting this blog because I was diagnosed with mild colitis two days ago.
Amidst my panic and tears and flurry of Googling, all I wanted to see was some comfort. I wanted to hear people’s stories and know that I’m not alone. I wanted to find other people like me, who were dealt a low blow, just when they thought that life was amazing.
I couldn’t find what I was looking for. I found user forums filled with struggles and tips and messages of hardship. I found links to medicines with long names I can’t pronounce. I found some groups that run together but are more focused on fundraising for a cure that seems to me to be too far in the distant future.
But I didn’t find enough stories. I didn’t find enough people saying, this is what I’m dealing with and it sucks but I’m going to be okay. I didn’t find enough people who were creating a safe space to talk.
I’m sure those things are out there. It’s only been two days and I can’t possibly have exhausted my research already.
But I’m going to start this blog as a space for those things. I’m going to tell my story, and I invite whoever is reading, whoever has Crohn’s disease or ulcerative colitis, to join me. Join the conversation, create a community. Be strong or angry, or sad or vulnerable or whatever it is you need to be.
I don’t need to know your name, but I need to know you’re out there. I need to know that I’m not alone. And I need this space to figure this all out, because my life is about to change forever.